Time flies, we are already 3 months on from the last update. Fortunately, the MRI in October showed that the tumor is still stable! The next MRI is already scheduled for January. But first ewe will enjoy the upcoming Christmas holiday.
In the meantime, we have set up a foundation: Cure Lex. Cure Lex. We've also made some updates to the website. You can now donate directly to the foundation through the donation page/button on the website! And be sure to check out the upcoming events.
Fortunately, there are more and more studies ongoing on DMGs, so there is more hope for effective treatments. Unfortunately, all possible treatments still cost a lot of money. Also, we must hope that the tumor remains stable as long as possible, because all research is still in early stages. In addition, many of the treatments are currently only available for children and not for adults and they don’t allow any foreign patients due to COVID-19. We will continue to search, read, and make contacts.
Will you continue to share our story?
